etc etc etc 🙂
The American Cochlear Implant Alliance is a not-for-profit membership organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the US.
ASDC is a national organization of families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard of hearing. The ASDC helps families find meaningful communication options, particularly through the competent use of sign language, in their home, school, and community.
American Society for Deaf Children
800 Florida Ave, NE #2047
Washington, DC 20002-3695
(800) 942-2732 (Voice)
(410) 795-0965 (Fax)
ASHA is the national professional, scientific, and credentialing association for more than 166,000 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students.
American Speech-Language-Hearing Association
2200 Research Boulevard
Rockville, MD 20850-3289
Members: (800) 498-2071 (Voice)
Nonmembers: (800) 638-8255 (Voice)
(301) 296-8580 (Fax)
(301) 296-5650 (TTY)
BEGINNINGS for Parents of Children who are Deaf or Hard of Hearing is a non-profit that helps parents and families understand hearing loss, and the diverse needs of children who are deaf or hard of hearing.
Boys Town National Research Hospital’s mission is to “help heal America’s children and operate the nation’s leading clinical research center for childhood hearing loss and related disorders.” Their website offers information on the causes of hearing loss in children as well as information on hearing testing.
The website My Baby’s Hearing was created by the Boys Town National Research Hospital to answer parents’ questions about infant hearing screening and follow-up testing, steps to take after diagnosis of hearing loss, hearing loss and hearing aids, language and speech, and parenting issues.
Boys Town National Research Hospital
555 N. 30th Street
Omaha, NE 68131
(402) 498-6511 (Voice)
CID is a school where children, birth to age 12, who are deaf and hard of hearing learn to listen, talk and read without using sign language.
The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Center for Parent Information and Resources
c/o Statewide Parent Advocacy Network
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100 (Voice)
The Clerc Center provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Its mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States.
800 Florida Avenue, NE
Washington DC 20002-3695
The Cochlear Implant Education Center (CIEC) is a unit of the Laurent Clerc National Deaf Education Center at Gallaudet University. It is an educational resource center created in 2000 to share information about cochlear implant technology and its role in the education and lives of children who are deaf from birth through high school-aged. The CIEC has a unique focus in exploring and sharing considerations and practices related to the development and use of both spoken language and signed language for children using cochlear implant technology.
Manager, Projects-Language Development and Communication
Laurent Clerc National Deaf Education Center
800 Florida Ave. NE
Washington, DC 20002
(202) 651-5638 (Voice)
The Conference of Educational Administrators of Schools and Programs for the Deaf is an association of schools and educational programs involved with the education of deaf and hard of hearing individuals.
The Convention of American Instructors of the Deaf(CAID) is the organization for all teachers, administrators, educational interpreters, residential personnel, and other concerned professionals involved in education of the deaf.
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
Council for Exceptional Children
2900 Crystal Drive, Suite 100
Arlington, VA 22202-3557
(888) 232-7733 (Voice)
(866) 915-5000 (TTY)
The DFCC is an organization dedicated to helping parents make better decisions for their deaf and hard of hearing children. Their website has information and resources on hearing loss in children from birth to teens.
Children’s Hospital of Philadelphia
Deafness and Family Communication Center
3440 Market St., 4th Floor
Behavioral Health Center
Philadelphia, PA 19104
(215) 590-7440 (Voice)
(215) 590-6817 (TTY)
The Deaf and Hard of Hearing Alliance (DHHA) is a coalition of organizations that focuses on public policyand other issues related to improving the quality of life for people who are deaf or hard of hearing, andall people with hearing loss. DHHA’s major objective is to provide a forum whereby relevantinformation can be shared, plans made and actions taken for collaborative and mutually supportiveefforts. DHHA members are not-for- profit national consumer and professional entities of or for peoplewho are deaf or hard of hearing, which represent same, or which deal with deafness, hearing loss, andrelated issues.
Consumer Co-Chair, Lise Hamlin, Hearing Loss Association of America
DeafTEC provides resources for high schools and community colleges that educate deaf and hard-of-hearing students in STEM-related programs.
DeafTEC: Technological Education Center for Deaf and Hard-of-Hearing Students
NSF ATE National Center of Excellence
National Technical Institute for the Deaf
Rochester Institute of Technology
Rosica Hall, Suite 1100
52 Lomb Memorial Drive
Rochester, NY 14623
CDC has been tracking the number of children with hearing loss since the early 1980’s. By studying the number of people with hearing loss over time, we can find out if the number is rising, dropping, or staying the same. We can also compare the number of children with hearing loss in different groups of people. This information helps us look for potential risk factors for hearing loss and helps health departments, service providers and early intervention programs to estimate case loads, plan for services, and advocate for needed resources.
Hearing Loss EHDI Programs
1600 Clifton Road
Atlanta, GA 30329-4027
(800) 232-4636 (Voice)
(888) 232-6348 (TTY)
The Educational Audiology Association is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings.
The mission of the Educational Audiology Association is to act as the primary resource and as an active advocate for its members through its publications and products, continuing educational activities, networking opportunities and other professional endeavors.
Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing.We are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support.
Hearing Health Foundation (HHF) is the largest private funder of hearing research, with a mission to prevent and cure hearing loss and tinnitus through groundbreaking research and to promote hearing health.
HEARING HEALTH FOUNDATION
363 7th Avenue, 10th Floor
New York, NY 10001-3904
(212) 257-6140 (Voice)
(888) 435-6104 (TTY)
HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. Its national support network includes an office in the Washington, DC, area as well as 14 state organizations and 200 local chapters.
Hearing Loss Association of America
7910 Woodmont Avenue, Suite 1200
Bethesda, MD 20814
(301) 657-2248 (Voice)
(301) 913-9413 (Fax)
Established in 1880, the NAD is the nation’s largest consumer organization safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications. The NAD focuses on grassroots advocacy and empowerment, captioned media, deafness-related information and publications, legal assistance, policy development and research, public awareness, certification of interpreters, and youth leadership development.
National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910
(301) 587-1788 (ZVRS)
(301) 328-1443 (Sorenson)
(301) 338-6380 (Convo)
(301) 453-2390 (Purple)
(301) 587-1789 (TTY)
(301) 587-1791 (Fax)
National Association of State Directors of Special Education (NASDE) focuses on improving educational services and outcomes for children and youth with disabilities throughout the United States, the Department of Defense, the federated territories and the Freely Associated States of Palau, Micronesia and the Marshall Islands.
225 Reinekers Lane, Suite 420
Alexandria, VA 22314
(703) 519-3800 (Voice)
(703) 519-3808 (Fax)
NBDA is the oldest and largest consumer organization of deaf and hard of hearing black people in the United States. Black deaf leaders were concerned that deaf and hard of hearing African Americans were not adequately represented in leadership and policy-making activities affecting their lives, so they established NBDA in 1982.
As a national technical assistance center funded by the federal Department of Education, NCDB works to improve the quality of life for children who are deaf-blind and their families by:
- Creating visibility and direction for identified priorities through a range of practices, activities, supports and partnerships.
- Identifying and encouraging new innovations in local, state, and national practice and policy.
- Promoting opportunity for reflection, debate, and constructive dialogue around ideas and developing practice.
- Maintaining a rich repository of content, history, and knowledge, easily available and shared by all who are part of the community of deaf-blindness.
National Center on Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
(503) 838-8754 (Voice)
(503) 838-8150 (Fax)
NCHAM serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems.
NCHAM at Utah State University
1615 Old Main Hill
Logan, UT 84322
(435) 797-3584 (Voice)
NCSA promotes the effective use of cued speech for communication, language acquisition in more than 50 languages, and literacy. Through publications, exhibits, family/professional learning vacations, and conferences, NCSA provides education, awareness, and support for people with language, hearing, and learning needs, assisting their families and the professionals who serve them.
NDC is a technical assistance and dissemination center funded by the Office of Special Education Programs (OSEP). Our mission is to support postsecondary outcomes for individuals who are deaf, deafblind, deafdisabled, hard of hearing, or late deafened.NDC activities draw on evidence-based strategies to educate and engage with stakeholders across the nation. We seek to create conditions for optimal success in a way that recognizes and honors the experiences, perspectives, and strengths of deafindividuals (see below for a discussion of terminology).
National Deaf Center
The University of Texas at Austin
1912 Speedway D4900
Austin, TX 78712-1284
(512) 232-2320 (Voice)
(512) 232-2322 (Fax)
The National Family Association for Deaf-Blind (NFADB) is a nonprofit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community.
National Family Association for Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
(800) 255-0411 (Voice)
(516) 883-9060 (Fax)
NIDCD is one of the institutes that make up the National Institutes of Health. NIDCD supports and conducts research and distributes information to improve the lives of millions of individuals with communication disorders.
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD 20892-2320
(800) 241-1044 / (301) 827-8183 (Voice)
(800) 241-1055 (TTY)
(301) 402-0018 (Fax)
The NIDCD Information Clearinghouse provides information and resources for health professionals, patients, industry, and the public. The NIDCD Directory lists organizations that are national in scope and that focus on health issues relating to hearing, balance, smell, taste, voice, or speech. The directory is designed to encourage networking among individuals and organizations that have an interest in deafness and communication disorders.
NIDCD Information Clearinghouse
1 Communication Avenue
Bethesda, MD 20892-3456
The Registry of Interpreters for the Deaf, Inc. (RID), a national membership organization, plays a leading role in advocating for excellence in the delivery of interpretation and transliteration services between people who use sign language and people who use spoken language.
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
(703) 838-0030 (Voice)
(571) 257-3957 (Videophone)
(703) 838-0454 (Fax)
SayWhatClub is an on-line group of circa 400 late-deafened, hard of hearing and Deaf adults and other interested people who provide support and encouragement to each other through e-mail.Our goal is to provide a friendly, good-humored place to exchange conversation, information, advice, deep thoughts, humor, tall tales, and chit-chat. Participants get to know each other and develop an on-line “community feeling.”
The SEE Center provides quality training and support for those who use Signing Exact English.
TDI is a national advocacy organization focused on addressing equal access issues in telecommunications and media.
Telecommunications for the Deaf and Hard of Hearing, Inc.
8630 Fenton Street, #121
Silver Spring, MD 20910
(301) 589-3006 (TTY)