National Organizations

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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.

Contact Information:
Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place, NW
Washington, DC 20007
(202) 337-5220 (Voice)
(202) 337-5221 (TTY)
http://www.agbell.org/about/contact-us/
info@agbell.org


American Academy of Audiology (AAA)

AAA Logo

The American Academy of Audiology is the world’s largest professional organization of, by, and for audiologists. The active membership of more than 12,000 is dedicated to providing quality hearing care services through professional development, education, research, and increased public awareness of hearing and balance disorders.

Contact Information:
American Academy of Audiology
11480 Commerce Park Drive, Suite 220
Reston, VA 20191
(800) 222-2336 (Voice)
(703) 790-8631 (Fax)
https://www.audiology.org/contact-us


American Association of the Deaf-Blind

AADB is a national consumer organization of, by, and for deaf-blind Americans and their supporters.

Contact Information:
American Association of the Deaf-Blind
3825 LaVista Road, W-2
Tucker, GA 30084
http://www.aadb.org/aadb/contact.html
aadb-info@aadb.org


American Cochlear Implant Alliance

ACIA Logo

The American Cochlear Implant Alliance is a not-for-profit membership organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness and advocating for improved access to cochlear implants for patients of all ages across the US.

Contact Information:
ACI Alliance
P.O. Box 103
McLean, VA 22101-0103
(703) 534-6146 (Voice)
http://www.acialliance.org/general/?type=CONTACT
info@acialliance.org


American Society for Deaf Children (ASDC)

ASDC is a national organization of families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard of hearing. The ASDC helps families find meaningful communication options, particularly through the competent use of sign language, in their home, school, and community.

Contact Information:
American Society for Deaf Children
800 Florida Ave, NE #2047
Washington, DC 20002-3695
(800) 942-2732 (Voice)
(410) 795-0965 (Fax)
http://deafchildren.org/contact/


American Speech-Language-Hearing Association (ASHA)

ASHA Logo

ASHA is the national professional, scientific, and credentialing association for more than 166,000 members and affiliates who are audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students.

Contact Information:
American Speech-Language-Hearing Association
2200 Research Boulevard
Rockville, MD 20850-3289
Members: (800) 498-2071 (Voice)
Nonmembers: (800) 638-8255 (Voice)
(301) 296-8580 (Fax)
(301) 296-5650 (TTY)
http://www.asha.org/Forms/Contact-ASHA/


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Beginnings

BEGINNINGS for Parents of Children who are Deaf or Hard of Hearing is a non-profit that helps parents and families understand hearing loss, and the diverse needs of children who are deaf or hard of hearing.

Contact Information:
Beginnings
156 Wind Chime Court, Suite A
Raleigh, NC 27615
(919) 715-4092 (Voice/TTY)
(919) 715-4093 (Fax)
http://ncbegin.org/contact/
raleigh@ncbegin.org


Boys Town National Research Hospital

Boystown Logo

Boys Town National Research Hospital’s mission is to “help heal America’s children and operate the nation’s leading clinical research center for childhood hearing loss and related disorders.” Their website offers information on the causes of hearing loss in children as well as information on hearing testing.

The website My Baby’s Hearing was created by the Boys Town National Research Hospital to answer parents’ questions about infant hearing screening and follow-up testing, steps to take after diagnosis of hearing loss, hearing loss and hearing aids, language and speech, and parenting issues.

Contact Information:
Boys Town National Research Hospital
555 N. 30th Street
Omaha, NE 68131
(402) 498-6511 (Voice)
https://www.boystownhospital.org/contact/Pages/ContactUs.aspx


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Central Institute for the Deaf (CID)

CID logo

CID is a school where children, birth to age 12, who are deaf and hard of hearing learn to listen, talk and read without using sign language.

Contact Information:
Center for Hearing and Communication
825 South Taylor Ave
St. Louis, MO 63110
(314) 977-0132 (Voice)
(314) 977-0023 (Fax)
https://cid.edu/about-us/contact-find-us/
cid@cid.edu


Center for Parent Information and Resources

Parent Center Hub Logo

The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

Contact Information:
Center for Parent Information and Resources
c/o Statewide Parent Advocacy Network
35 Halsey St., 4th Floor
Newark, NJ 07102
(973) 642-8100 (Voice)
http://www.parentcenterhub.org/contact-us/
malizo@spannj.org


Clerc Center

Clerc Logo

The Clerc Center provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Its mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States.

Contact Information:
Gallaudet University
800 Florida Avenue, NE
Washington DC 20002-3695
(202) 651-5855(Voice/TTY)
http://www3.gallaudet.edu/clerc-center/contact-us.html
clerc.center@gallaudet.edu


Cochlear Implant Education Center

The Cochlear Implant Education Center (CIEC) is a unit of the Laurent Clerc National Deaf Education Center at Gallaudet University. It is an educational resource center created in 2000 to share information about cochlear implant technology and its role in the education and lives of children who are deaf from birth through high school-aged. The CIEC has a unique focus in exploring and sharing considerations and practices related to the development and use of both spoken language and signed language for children using cochlear implant technology.

Contact Information:
Debra Nussbaum
Manager, Projects-Language Development and Communication
Laurent Clerc National Deaf Education Center
Gallaudet University
800 Florida Ave. NE
Washington, DC 20002
(202) 651-5638 (Voice)
http://www3.gallaudet.edu/clerc-center/our-resources/cochlear-implant-education-center.html
Debra.Nussbaum@gallaudet.edu


Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

CEASD logo

The Conference of Educational Administrators of Schools and Programs for the Deaf is an association of schools and educational programs involved with the education of deaf and hard of hearing individuals.

Contact Information:
CEASD, Inc.
P.O. Box 116
Washington Grove, MD 20880
(202) 999-2204 (Voice)
(202) 866-6248 (VP)
http://www.ceasd.org
nationaloffice@ceasd.org


Convention of American Instructors of the Deaf (CAID)

CAID logo

The Convention of American Instructors of the Deaf(CAID) is the organization for all teachers, administrators, educational interpreters, residential personnel, and other concerned professionals involved in education of the deaf.

Contact Information:
CAID
P.O. Box 377
Bedford, TX 76095-0377
(817) 354-8414 (Voice/TTY)
http://www.caid.org
office.manager@caid.org


Council for Exceptional Children

CEC Logo

The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

Contact Information:
Council for Exceptional Children
2900 Crystal Drive, Suite 100
Arlington, VA 22202-3557
(888) 232-7733 (Voice)
(866) 915-5000 (TTY)
http://www.cec.sped.org/About-Us/Contact-Us
service@cec.sped.org


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Deafness and Family Communication Center (DFCC) at the Children’s Hospital of Philadelphia

Raising Deaf Kids Logo

The DFCC is an organization dedicated to helping parents make better decisions for their deaf and hard of hearing children. Their website has information and resources on hearing loss in children from birth to teens.

Contact Information:
Children’s Hospital of Philadelphia
Deafness and Family Communication Center
3440 Market St., 4th Floor
Behavioral Health Center
Philadelphia, PA 19104
(215) 590-7440 (Voice)
(215) 590-6817 (TTY)
(215) 590-1335
http://www.raisingdeafkids.org/about.php
info@raisingdeafkids.org


Deaf and Hard of Hearing Alliance

The Deaf and Hard of Hearing Alliance (DHHA) is a coalition of organizations that focuses on public policyand other issues related to improving the quality of life for people who are deaf or hard of hearing, andall people with hearing loss. DHHA’s major objective is to provide a forum whereby relevantinformation can be shared, plans made and actions taken for collaborative and mutually supportiveefforts. DHHA members are not-for- profit national consumer and professional entities of or for peoplewho are deaf or hard of hearing, which represent same, or which deal with deafness, hearing loss, andrelated issues.

Contact Information:
Consumer Co-Chair, Lise Hamlin, Hearing Loss Association of America
https://dhha.info/contact-2/


DeafTEC

DeafTEC provides resources for high schools and community colleges that educate deaf and hard-of-hearing students in STEM-related programs.

Contact Information:
DeafTEC: Technological Education Center for Deaf and Hard-of-Hearing Students
NSF ATE National Center of Excellence
National Technical Institute for the Deaf
Rochester Institute of Technology
Rosica Hall, Suite 1100
52 Lomb Memorial Drive
Rochester, NY 14623
http://www.deaftec.org/contact


Department of Health and Human Services, Centers for Disease Control and Prevention (CDC)

CDC logo

CDC has been tracking the number of children with hearing loss since the early 1980’s. By studying the number of people with hearing loss over time, we can find out if the number is rising, dropping, or staying the same. We can also compare the number of children with hearing loss in different groups of people. This information helps us look for potential risk factors for hearing loss and helps health departments, service providers and early intervention programs to estimate case loads, plan for services, and advocate for needed resources.

Contact Information:
Hearing Loss EHDI Programs
1600 Clifton Road
Atlanta, GA 30329-4027
(800) 232-4636 (Voice)
(888) 232-6348 (TTY)
https://wwwn.cdc.gov/dcs/RequestForm.aspx


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Educational Audiology Association

EAA Logo

The Educational Audiology Association is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings.

The mission of the Educational Audiology Association is to act as the primary resource and as an active advocate for its members through its publications and products, continuing educational activities, networking opportunities and other professional endeavors.

Contact Information:
Central Office
700 McKnight Park Drive,Suite 708
Pittsburgh, PA 15237
(800) 460-7322 (Voice)
(888) 729-3489 (Fax)
http://edaud.org
admin@edaud.org


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Hands & Voices

Hands and Voices Logo

Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing.We are non-biased about communication methodologies and believe that families can make the best choices for their child if they have access to good information and support.

Contact Information:
Hands & Voices
PO Box 3093
Boulder CO 80307
(303) 492-6283 (Voice)
http://www.handsandvoices.org/contact.htm
Parentadvocate@handsandvoices.org


Hearing Health Foundation

Hearing Health Foundation Logo

Hearing Health Foundation (HHF) is the largest private funder of hearing research, with a mission to prevent and cure hearing loss and tinnitus through groundbreaking research and to promote hearing health.

Contact Information:
HEARING HEALTH FOUNDATION
363 7th Avenue, 10th Floor
New York, NY 10001-3904
(212) 257-6140 (Voice)
(888) 435-6104 (TTY)
https://hearinghealthfoundation.org/contact-us/
info@hhf.org


Hearing Loss Association of America (HLAA)

Hearing Loss Association Logo

HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. Its national support network includes an office in the Washington, DC, area as well as 14 state organizations and 200 local chapters.

Contact Information:
Hearing Loss Association of America
7910 Woodmont Avenue, Suite 1200
Bethesda, MD 20814
(301) 657-2248 (Voice)
(301) 913-9413 (Fax)
http://www.hearingloss.org/content/contact-us


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National Association of the Deaf (NAD)

Established in 1880, the NAD is the nation’s largest consumer organization safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications. The NAD focuses on grassroots advocacy and empowerment, captioned media, deafness-related information and publications, legal assistance, policy development and research, public awareness, certification of interpreters, and youth leadership development.

Contact Information:
National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD 20910
(Voice/Videophone)
(301) 587-1788 (ZVRS)
(301) 328-1443 (Sorenson)
(301) 338-6380 (Convo)
(301) 453-2390 (Purple)
(301) 587-1789 (TTY)
(301) 587-1791 (Fax)
https://www.nad.org/contact-us/
https://www.nad.org/contact-nad/


National Association of State Directors of Special Education (NASDE)

NASDSE Logo

National Association of State Directors of Special Education (NASDE) focuses on improving educational services and outcomes for children and youth with disabilities throughout the United States, the Department of Defense, the federated territories and the Freely Associated States of Palau, Micronesia and the Marshall Islands.

Contact Information:
NASDE
225 Reinekers Lane, Suite 420
Alexandria, VA 22314
(703) 519-3800 (Voice)
(703) 519-3808 (Fax)
http://www.nasdse.org/AboutNASDSE/ContactUs/tabid/409/Default.aspx


National Black Deaf Advocates (NBDA)

NCDBA Logo

NBDA is the oldest and largest consumer organization of deaf and hard of hearing black people in the United States. Black deaf leaders were concerned that deaf and hard of hearing African Americans were not adequately represented in leadership and policy-making activities affecting their lives, so they established NBDA in 1982.

Contact Information:
National Black Deaf Advocates
P.O. Box 564
Secane, PA 19018
http://www.nbda.org/contact
info@nbda.org


National Center on Deaf-Blindness

NCDB Logo

As a national technical assistance center funded by the federal Department of Education, NCDB works to improve the quality of life for children who are deaf-blind and their families by:

  • Creating visibility and direction for identified priorities through a range of practices, activities, supports and partnerships.
  • Identifying and encouraging new innovations in local, state, and national practice and policy.
  • Promoting opportunity for reflection, debate, and constructive dialogue around ideas and developing practice.
  • Maintaining a rich repository of content, history, and knowledge, easily available and shared by all who are part of the community of deaf-blindness.

Contact Information:
National Center on Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
(503) 838-8754 (Voice)
(503) 838-8150 (Fax)
https://nationaldb.org/contact
support@nationaldb.org/ info@nationaldb.org


National Center for Hearing Assessment and Management (NCHAM)

NCHAM Logo

NCHAM serves as the National Resource Center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems.

Contact Information:
NCHAM at Utah State University
1615 Old Main Hill
Logan, UT 84322
(435) 797-3584 (Voice)
http://www.infanthearing.org/support/index.html
http://www.infanthearing.org/contact/emailer.php?id=15


National Cued Speech Association (NCSA)

NCSA promotes the effective use of cued speech for communication, language acquisition in more than 50 languages, and literacy. Through publications, exhibits, family/professional learning vacations, and conferences, NCSA provides education, awareness, and support for people with language, hearing, and learning needs, assisting their families and the professionals who serve them.

Contact Information:
National Cued Speech Association
1300 Pennsylvania Ave NW, Suite 190-713
Washington, DC 20004
800-459-3529 (Voice)
http://www.cuedspeech.org/contact
info@cuedspeech.org


National Deaf Center

NDC is a technical assistance and dissemination center funded by the Office of Special Education Programs (OSEP). Our mission is to support postsecondary outcomes for individuals who are deaf, deafblind, deafdisabled, hard of hearing, or late deafened.NDC activities draw on evidence-based strategies to educate and engage with stakeholders across the nation. We seek to create conditions for optimal success in a way that recognizes and honors the experiences, perspectives, and strengths of deafindividuals (see below for a discussion of terminology).

Contact Information:
National Deaf Center
The University of Texas at Austin
1912 Speedway D4900
Austin, TX 78712-1284
(512) 232-2320 (Voice)
(512) 232-2322 (Fax)
https://www.nationaldeafcenter.org/get-help
help@nationaldeafcenter.org


National Family Association for Deaf-Blind

NFADB Logo

The National Family Association for Deaf-Blind (NFADB) is a nonprofit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community.

Contact Information:
National Family Association for Deaf-Blind
141 Middle Neck Road
Sands Point, NY 11050
(800) 255-0411 (Voice)
(516) 883-9060 (Fax)
http://nfadb.org/have-a-question/
NFADBinfo@gmail.com


National Institute on Deafness and Other Communication Disorders (NIDCD)

NIDCD is one of the institutes that make up the National Institutes of Health. NIDCD supports and conducts research and distributes information to improve the lives of millions of individuals with communication disorders.

Contact Information:
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD 20892-2320
(800) 241-1044 / (301) 827-8183 (Voice)
(800) 241-1055 (TTY)
(301) 402-0018 (Fax)
https://www.nidcd.nih.gov/contact-us
nidcdinfo@nidcd.nih.gov


NIDCD Information Clearinghouse

The NIDCD Information Clearinghouse provides information and resources for health professionals, patients, industry, and the public. The NIDCD Directory lists organizations that are national in scope and that focus on health issues relating to hearing, balance, smell, taste, voice, or speech. The directory is designed to encourage networking among individuals and organizations that have an interest in deafness and communication disorders.

Contact Information:
NIDCD Information Clearinghouse
1 Communication Avenue
Bethesda, MD 20892-3456
800-241-1044 (Voice)
800-241-1055 (TTY)
http://www.nidcd.nih.gov/health/misc/pages/clearinghouse.aspx
nidcdinfo@nidcd.nih.gov


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Registry of Interpreters for the Deaf

The Registry of Interpreters for the Deaf, Inc. (RID), a national membership organization, plays a leading role in advocating for excellence in the delivery of interpretation and transliteration services between people who use sign language and people who use spoken language.

Contact Information:
Registry of Interpreters for the Deaf
333 Commerce Street
Alexandria, VA 22314
(703) 838-0030 (Voice)
(571) 257-3957 (Videophone)
(703) 838-0454 (Fax)
http://www.rid.org/contact-us/
RIDinfo@rid.org


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Say What? Club

Say What Club Logo

SayWhatClub is an on-line group of circa 400 late-deafened, hard of hearing and Deaf adults and other interested people who provide support and encouragement to each other through e-mail.Our goal is to provide a friendly, good-humored place to exchange conversation, information, advice, deep thoughts, humor, tall tales, and chit-chat. Participants get to know each other and develop an on-line “community feeling.”

Contact Information:
http://www.saywhatclub.com
info@saywhatclub.com


SEE Center for the Advancement of Deaf Children

SEE Center Logo

The SEE Center provides quality training and support for those who use Signing Exact English.

Contact Information:
The SEE Center
10443 Los Alamitos Blvd
Los Alamitos, California 90720
(562) 430-1467 (Voice/TTY)
(562) 795-6614 (Fax)
http://www.seecenter.org
seecenter@seecenter.org


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Telecommunications for the Deaf and Hard of Hearing, Inc. (TDI)

TDI Logo

TDI is a national advocacy organization focused on addressing equal access issues in telecommunications and media.

Contact Information:
Telecommunications for the Deaf and Hard of Hearing, Inc.
8630 Fenton Street, #121
Silver Spring, MD 20910
(301) 563-9112(Voice/Videophone)
(301) 589-3006 (TTY)
https://tdiforaccess.org/e-mail-us-at-tdi/